Congenital Heart Disease and Treatment
Congenital heart disease (congenital heart defect) is a problem in the structure of the heart that is present at birth. In most cases, no major symptoms or causes of congenital heart disease are identified.
The Harley Street Clinic offers congenital heart care for life to its special cardiac patients from before birth, throughout their young lives and continuing on into adolescence and adulthood. By supporting and nurturing patients in each stage of their development, our highly trained and skilled team of professionals offer them every opportunity to live full lives of the highest quality and standard.
Congenital cardiac care for everyone
The Harley Street Clinic is unique in that care is offered for our special cardiac patients from before birth, throughout their young lives and continuing on into adolescence and adulthood. By supporting and nurturing patients in each stage of their development, our highly trained and skilled team of professionals offer them every opportunity to live full lives of the highest quality and standard. We offer the complete range of congenital cardiac services for inpatients and outpatients, catering to individuals of any age from any country, taking care to incorporate and support each person’s cultural needs.
World renowned Cardiologists and Cardiac Surgeons with specialist expertise in congenital heart disease undertake:
- Medical Management
- Diagnostic Imaging
- Interventional Cardiology
- Cardiac Surgery
These individuals are supported by specialised cardiac nurses (trained in both paediatric and adult care) and other health professionals including pharmacists, dieticians, physiotherapists and radiographers to ensure that each person receives a gold standard level of care throughout their treatment.
Paediatric Congenital Heart Disease
Most patients with congenital heart disease present in childhood. Our paediatric cardiac service is a dedicated unit for the care of babies and children with heart disease, fully supported by diagnostic imaging, catheter and electrophysiology laboratories, theatres and an Intensive Care Unit. The cardiac nurse specialists and cardiac consultants involve the parents and children in their “Cardiac Journey” and pathway of care from the day of referral or birth, enabling the family to understand, adapt and confidently take part in their child’s progress and health.
Each family have their own room whilst staying in the Hospital, with fully trained paediatric nursing staff always on-hand. Daily contact with their cardiologist and associated specialists ensures the family are well informed and their hospital stay lasts no longer than needed. We provide a robust system of follow-up and 24 hour support in the community – either in the UK or internationally.
A special “Cardiac Passport” is given to each family and acts as a diary of communication, treatments and visits ensuring continuation of care wherever they may be in the world.
Grown-Up Congenital Heart Disease (GUCH)
Due to the success of paediatric treatment, most children with congenital heart disease now survive into adulthood. Therefore we have created a specialised centre to provide excellent care for this ‘new’ population – the Grown Up Congenital Heart (GUCH) Unit. We are delighted to look after our children who have progressed from our paediatric service as well as our new adolescent and adult patients who come to us for the first time. The service includes an integrated team of cardiologists and surgeons who provide world class treatment for our patients at all ages. This is
complimented by experts in the many non-cardiac problems that may require attention.
We recognise the new challenges faced by the children and their families as they become adults and aim to make the process of growing up as easy and smooth as possible. Our service enables our adult patients to organise their care around their busy schedules with flexibility for outpatient appointments and inpatient care. Each of our GUCH patients will have a cardiac passport which provides key information on their diagnosis, medical and surgical treatment, drug and other treatments and a management plan including scheduled visits. This not only streamlines
their care, but also enables good treatment to be provided outside our unit, especially in an emergency.
Dedicated GUCH staff contact details are provided for all our patients to ensure that their various medical carers have access to our expertise at all times.
If inpatient care is needed, GUCH patients are cared for in an appropriate environment within single rooms. Specialist GUCH nurses provide support and advice for a range of lifestyle issues, these include: pregnancy and contraception, sport and exercise and employment suitability, relevant to the cultural backgrounds of our patients.